The Tuberous Sclerosis Association (TSA) was launched in 1977 with a membership of 50 families and funds of just £25. We have grown from a round robin support letter to a professional organisation providing support to families affected by Tuberous Sclerosis Complex (TSC) across the UK.

For our five year strategy of 2019-2023, our aim is to ‘REACH more people and drive more REseArCH.’

The TSA is a registered charity with three charitable objectives:

• To support individuals affected by TSC, together with their families or carers
• To encourage and support research into the causes and management of TSC
• To provide education and information

We look to our past to retain our community spirit, but drive forward by pushing the boundaries of what a small and dedicated team is capable of achieving.